Accelerating Best Practices in Peer Support Around the World

Shanghai Integration Model

The Shanghai Integration Model:
A Three-Year Public Health Action Plan and a Platform for Peer Support

上海医院社区一体化模式: 公共卫生三年行动计划 和 同伴支持策略平台 - 中文版

糖尿病挑战着护理的维度(药物、专科服务、自我管理等)和护理人员(专科专家、全科医生、护士、营养师、患者教育者、家人和朋友以及糖尿病友)的整合。为了实现这两者,上海医院社区一体化模式通过位于人们居住社区的社区卫生服务中心将组织良好的专科护理与初级护理联系起来。社区卫生服务中心、三级医院和市政府卫生机构的代表制定了一项工作战略,强调以社区为基础的健康促进,以控制危险因子、早期发现、健康管理、并发症筛查和疾病/病例管理。

位于上海市第六人民医院的一个全市性的糖尿病预防和治疗中心为项目、困难或难治性的病例、培训和亚专业治疗给予指导。其亦提供一个全面的信息管理平台支持视网膜病变筛查的远程技术,并监测/指导基于算法的综合护理和转诊,从社区卫生服务中心到医院/专科护理,再到社区卫生服务中心进行持续护理。2015年,上海市政府启动了一项大型糖尿病项目,作为加强上海公共卫生三年行动计划的一部分。这一个三年行动计划的主要部分正通过上海医院社区一体化模式推出。

上海医院社区一体化模式是由前上海市交通大学附属第六人民医院院长、中华医学会糖尿病学分会前主任委员、国际糖尿病及其护理专家贾伟平教授指导。贾教授负责此一体化模式总体设计、实施和评估。

  • 上海有2400万人口,此公共卫生三年行动计划的目标及其初步进展包括:培训240个社区卫生服务中心的医务人员,每个中心平均服务10万居民,以改善糖尿病的预防和日常护理——迄今为止培训了1531名医务人员。
  • 空腹血糖、糖化血红蛋白和尿白蛋白与肌酐比值(UACR)的实验室测试标准化——能进行UACR的社区卫生服务中心的实验室从5家增加到148家。
  • 筛查30万糖尿病高危人群——通过195 家社区卫生服务中心 ( 上海共240 家)中筛查15万4100 位居民,发现16716名糖尿病友和20333名糖尿病前期病友。
  • 筛查25万名糖尿病友的周围神经病变、下肢动脉粥样硬化、肾病和视网膜病变–迄今为止,通过社区卫生服务中心筛查了近6万名患者。

上海医院社区一体化模式成为同伴支持策略的平台

单单通过社区卫生服务中心将专科/医院护理与初级护理相协调本身并不能保证改善健康结局。实现综合护理的好处亦需要糖友参与护理和日常自我管理。在通过评价社区卫生服务中心糖尿病护理时,医务人员报告说,只有30-40%的糖友落实自我管理行为,而医务人员认为这些行为能够更好地控制血糖。他们将其归因于对药物使用缺乏了解或误解(例如,不知道何时服药;当血糖控制良好时终止药物治疗),并且缺乏健康饮食、卡路里和食物类型的知识。他们还描述了社会心理和糖尿病相关痛苦或对糖尿病的漠不关心会损害个人护理和生活质量。而在老年人中,尤其发现其经常很难维持体力活动。

通过非专业人员的、基于社区的、志愿形式的同伴组长提供同伴支持,可以解决这些问题。

来自上海九家社区卫生服务中心的医务人员和同伴组长通过与美国Peers for Progress 全球性项目合作,就制定同伴支持项目提供建议,帮助糖友充分利用上海医院社区一体化模式的护理服务,并在日常自我管理中完成对良好糖尿病管理至关重要的任务。

根据不同的社区能力,同伴组长可以是有糖尿病相关经验的个人,也可以是从事公共卫生/健康促进的社区领袖。在上海,社区自我管理小组和居委会已被用作招募同伴组长的来源。

培训同伴组长主要强调

  • 同伴组长的主要角色不是位说教的糖尿病教育者,而是作为与糖友合作的伙伴,加强其参与护理和自我管理
  • 与同伴组长建立支持关系的基本价值
  • 同伴组长的角色更像朋友而不是老师
  • 社会和情感支持的重要性
  • 接受行为改变的渐进性

在整个培训过程中,一个关键原则是,同伴组长的有效性不在于他们的医疗专业知识或是成为“最好”的病友典范。相反的,当同伴组长能展现其如何应对糖尿病管理挑战时,是其更能发挥作用之处。也就是说,同伴组长分享他们对于糖友日常生活的经验才是体现组长有效性的关键。质量改进的目标包括确定和解决个人自我管理的各种影响因素、提高培训的有效性,以确保在沟通和支持技能方面的熟练程度,以及促进更好地管理同伴组长的切实可行的方法。

此同伴支持项目的一个延伸方案是旨在帮助那些拿到胰岛素处方的糖友开始并坚持使用胰岛素治疗。临床记录和从与医务人员和糖友的访谈显示,大多数糖友只使用口服药物,胰岛素使用不足。访谈揭示了各种障碍,包括缺乏胰岛素知识、担心胰岛素一旦开始就不能终止、不同型态胰岛素在社区卫生服务中心是否容易取得、胰岛素针头的经济负担、使用胰岛素的不便尤其是视力或手部稳定性受损的老年人、不愿在公共场所使用胰岛素,担心低血糖、体重增加或怕打针会痛。

同伴组长可以协助解决胰岛素治疗的这些障碍。

  • 态度:临床医务人员可能可以传达胰岛素治疗的价值,但来自“像我这样”的人的同伴支持在改变对“这对我来说会是什么样”的担忧方面尤其可信
  • 经济负担:同伴组长可以帮助个人解决具体问题,包括找到成本较低的方法来持续常规胰岛素治疗。
  • 知识:同伴组长可以通过解决问题和帮助糖友联系适当使用胰岛素来辅助临床教育。
  • 老年患者:经过适当培训,同伴组长有时间与那些需要额外帮助的人一起学习胰岛素管理。这包括进行家访直到长辈能够安全有效地使用胰岛素。

上海医院社区一体化模式已为全市创造了高质量、良好协调的糖尿病治疗的条件。此外,此模式为实施和提供同伴支持提供了强大的组织基础。同伴支持对上海医院社区一体化模式的附加价值是改善患者参与护理的情况,促进合作护理,更好地利用基于社区卫生服务中心的初级护理,以及加强初级护理和专科护理之间的整合。通过在上海建立同伴支持和综合护理的案例,这个项目希望鼓励中国的领导者在全国范围内采用类似的方法来提供更好的糖尿病护理。

[ Access Guides and Resources from this Project ]

Shanghai Sixth People's Hospital

Shanghai Sixth People’s Hospital

Diabetes challenges integration across both dimensions of care (medications, specialty services, self management, etc.) as well as contributors to care (specialists, primary care providers, nurses, dietitians, patient educators, family and friends, and individuals with diabetes). To achieve both of these, the Shanghai Integration Model (SIM) links well organized specialty care with primary care through Community Health Centers (CHCs) in the neighborhoods in which people live. Representatives from CHCs, tertiary hospitals, and municipal government health agencies developed a working strategy emphasizing community based health promotion for risk factor control, early detection, health management, and complication screening and disease/case management.

A city-wide prevention and treatment center at the Shanghai Sixth People’s Hospital provides guidance to the project, training, and subspecialty treatment of difficult or intractable cases. A comprehensive information management platform supports remote technology for retinopathy screening and monitors/guides algorithm-based integration of care and referrals both from CHCs to hospital/subspecialty care and back to CHCs for ongoing care. In 2015, the Shanghai Municipal Government initiated a large project for diabetes as part of the three-year action plan for strengthening the public health system in Shanghai. The major components of this three-year plan were rolled out through the SIM.

Professory Weiping Jia

Professor Weiping Jia

The SIM is directed by Professor Weiping Jia, past president of the Shanghai Sixth People’s Hospital, past president of the Chinese Diabetes Society, and international expert of diabetes and its care. Professor Jia is responsible for the overall design, implementation and evaluation of the SIM. Across Shanghai’s population of 24 million, the objectives of the three-year public health and its progress include:

  • Training of medical staff from all 240 CHCs, which each serve an average of 100,000 residents, to improve prevention and routine diabetes care – 1531 staff trained to date.
  • Standardization of laboratory tests for fasting glucose, hemoglobin A1c, and urine albumin-to-creatinine ratio (UACR) – Number of CHC labs conducting UACR tests increased from 5 to 148.
  • Screening 300,000 people at high risk for diabetes – 154,100 people have been screened through 195 of 240 CHCs, identifying 16,716 with diabetes and 20,333 with prediabetes.
  • Screening 250,000 people with diabetes for peripheral neuropathy, lower extremity atherosclerosis, nephropathy, and retinopathy – to date close to 60,000 people have been screened through the CHCs.

The Shanghai Integration Model as a Platform for Peer Support

The coordination of specialty/hospital care with primary care through CHCs does not itself guarantee improved outcomes. Realizing the benefits of integrated care requires patient engagement in care and daily self management. In evaluation of diabetes care through CHCs, staff reported that only 30-40% of patients practice self management behaviors that staff see as leading to better glucose control. They attributed this to a lack of knowledge or misunderstanding about medication use (e.g., not knowing when to take medications; terminating medication when glucose control is good) and also lack of knowledge about healthy diet, calories, and food types. They also described psychosocial and diabetes-specific distress or indifference about diabetes as compromising individual care and quality of life. Especially among older adults, there is often difficulty sustaining physical activity.

Peer support through nonprofessional, community-based, volunteer peer leaders can address these problems.

In collaboration with Peers for Progress, staff and peer leaders from ten Shanghai CHCs advised on the development of a peer support program to help patients make full use of care through the SIM and to carry out in their daily self management tasks critical to good diabetes management.

Depending on community capacity, peer leaders can be either individuals with lived experience of diabetes or community leaders that are engaged in public health promotion. In Shanghai, community self-management groups and residential committees have been tapped as sources for recruiting peer leaders.

S6PH Training

Maggy Coufal, Director of ACHE, leads a training in February 2017

Training for peer leaders emphasizes:

  • The principal role of peer leaders as collaborators with individuals in enhancing engagement in care and self-management
  • The fundamental value of a supportive relationship with a peer leader
  • The peer leaders’ role as more like friends than teachers
  • The importance of social and emotional support
  • Acceptance of the gradual nature of behavior change

Throughout the trainings, a key principle is that the effectiveness of peer leaders does not lie in their medical expertise or being the “best” patients. Instead, peer leaders are more effective when they model coping with the challenges of diabetes management; that is, sharing their experiential knowledge of day-to-day life with diabetes. Objectives for quality improvement include identifying and addressing various determinants of individual self management, improving training effectiveness to ensure proficiency in communication and support skills, and promoting practical ways to better manage peer leaders.

An extension of the peer leader program is designed to help those who are prescribed insulin to adopt and adhere to this component of their diabetes care. Clinical records and interviews with staff and patients revealed that most people with diabetes use only oral medication and under-utilize insulin. Interviews revealed a variety of barriers, including lack of insulin knowledge, worry that once insulin is begun it cannot be terminated, availability of insulin in CHCs, economic burden of insulin needles, inconvenience especially among older adults with compromised vision or hand steadiness, reluctance to use insulin in public areas, and worry about hypoglycemia, weight gain or needle pain.

Peer Leaders

Peer leaders can address these barriers to insulin care, for example:

Attitudes: Clinical staff may communicate the value of insulin therapy but peer support from someone “like me” is especially credible in changing concerns about “what will this be like for me?”

Economic burden: Peer leaders can help individuals solve concrete problems including finding less expensive ways to follow a routine.

Knowledge: Peer leaders may supplement clinic education by troubleshooting and rehearsing proper insulin use.

Older patients: Properly trained, peer leaders have time to spend with those who need extra help in learning to manage insulin. This can include making home visits until an individual is able to safely and effectively use insulin.

The Shanghai Integration Model has created the conditions for high quality, coordinated diabetes care across the city. In addition, the model provides a strong organizational base for implementing and delivering peer support. The added value of peer support to the Shanghai Integration Model is improved patient engagement in care, advancement toward collaborative care, greater utilization of CHC-based primary care, and stronger integration between primary and specialty care. By building the case for peer support and integrated care in Shanghai, this project hopes to encourage leaders in China to adopt similar approaches for better diabetes care across the country.

Group Photo website

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